Eight-year-old Harshal from Maharashtra has a rare genetic skin condition — Epidermolysis Bullosa (EB). It affected his entire body — he could not talk, walk or even write. And he stopped going to school. But now he has a reason to smile. A multidisciplinary approach by doctors at a private hospital has ensured that he can perform normal activities.

EB is characterised by extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma. Harshal’s parents had taken him to many hospitals in Maharashtra. But many doctors backed out looking at the severity of the condition. The family then headed to Bengaluru for treatment.